Biogen’s Aduhelm Not Accessible To Most Alzheimer’s Victims

A doctor and patient looking at a book


There was much excitement when Biogen’s Aduhelm was approved by the FDA for use on Alzheimer’s patients in June.  Although there was controversy in the medical community regarding whether or not it was effective, it gave hope for many suffering from a disease which hasn’t seen a promising new drug in nearly 20 years.  The problem is, the cost of the drug is so high at $56K/year few people have access to it.  Medicare recipients won’t find out until next year if they are going to cover the drug and, if so, for whom.  Stephen Salloway, director of Butler Hospital’s Memory and Aging Program, one of the few places serving up the drug, says that by next week it will have treated ten patients with the drug, with more than 100 others on a waiting list.  Those few are paying cash.  “That’s not the way I want to go about this, that only people with means can access the drug,†said Dr. Salloway.  “That’s not what the FDA intended.  It isn’t equitable.â€Â  I agree, however, with the Medicare fund quickly running out of money without even covering drugs like this, a solution needs to come from Congress at the behest of President Biden.

https://www.wsj.com/articles/biogens-new-alzheimers-drug-beyond-reach-for-many-patients-11630077741

Pacific Grove, CA Family Caregivers Face Heartbreaking Journey With Alzheimer’s Disease, Often Ending Up In Hospice

A woman and an old lady smiling at each other.


There was a heart breaking article in the Wall Street Journal recently.  It featured Nick Clement, age 78, who has cared for his wife Lucy for the past decade.  Lucy has Lewy body dementia as well as Alzheimer’s disease.  Nick wanted to take care of his wife, however, he quickly found out how difficult it is taking care of someone who is slipping rapidly into dementia.  As her disease progressed, she was unable to brush her teeth or comb her hair, so Nick did that too.  He said that some friends stopped calling, which can be heartbreaking.  Eventually, after Lucy had dropped from https://www.homecaremag.com/june-2021/buzz-vibration-therapy125 pounds down to 90, it took its toll on Nick who was gaunt and depressed.  He had to call in hospice which took over Lucy’s care.  Hospice asked Nick if he had told Lucy it was OK for her to go.  He had not, but went to her room and looked into her eyes and told her he would be alright, it was OK to go.  Sadly, she died the next morning.  Unfortunately, most of us will have to go through this with a family member.  If you need help, CHOMP has a service called Hospice of the Central Coast, as does the Visiting Nurses Association (see links below).  Please reach out for help if you need it, they both have compassionated caregivers.

https://www.montagehealth.org/care-treatment/hospice/

Monterey, CA Can Driving Habits And Credit Scores Predict Future Alzheimer’s Or Dementia Diagnosis? By : Derek Baine

An older woman with a gray hair sitting in front of trees.


There has been such slow progress on the search for a cure for Alzheimer’s disease, I was pleased to see that some researchers are focusing on finding early clues as to who may be vulnerable to getting Alzheimer’s disease or some other type of dementia.  A recent article in The New York Times said that some scientists believe that pathologies underlying brain decline may begin many years before symptoms emerge.  A spate of experiments is underway to see if little things like overlooking a couple of credit card payments or habitually braking while driving could be a sign that dementia is in your future.  “Early detection is key for intervention, at the stage when that would be most effective,†said Saye Bayat, the lead author of a driving study funded by the National Institutes of Health and performed at Washington University.  The study took 64 older adults with preclinical Alzheimer’s disease as determined by spinal taps and 75 who were deemed cognitively normal (results were not shared with the study participants).  For a year, researchers measured both groups’ driving performance.  The study found that driving behavior and age could predict preclinical Alzheimer’s 88% of the time.  Those findings could spur recruitment for clinical trials and allow for interventions—like an alert when a car drifts—to help keep drivers safely on the road.  Dr. Jason Karlawish, a geriatrician and co-director of the Penn Memory Center, called the study “provocative†and well designed.  “The results suggest that monitoring a real-world, cognitively intense behavior can detect the earliest, subtle signs of emerging cognitive impairment,†he said.  Another study analyzed medical records and consumer credit reports for more than 80,000 Medicare beneficiaries and found that those who eventually received a diagnosis of Alzheimer’s disease were significantly more likely to have delinquent credit card payments (and sub-prime credit scores) than those with similar demographics who never received an Alzheimer’s diagnosis.  I hope these studies bear fruit.

 

https://www.nytimes.com/2021/08/23/health/dementia-behavior-alzheimers.html

 

Carmel-by-the-sea, CA Dealing With A Loved One With Alzheimer’s Disease Is Always A Struggle : Try The Montessori Method

A purple square with the words " the end of alzheimer 's starts with me ".


Regular readers of my blog know that both my father and grandmother had this terrible disease when they passed away.  There are wonderful people at our local chapter of Alzheimer’s Association in Ryan’s Ranch.  It is always a struggle figuring out how to deal with a loved one, as the symptoms can seem to change from day to day.  And unlike most other chronic diseases, there is little that can be done in the way of treatment.  One relatively new method has been used for more than a century on special needs children and is being tried out on those with dementia.  It’s called the Montessori method for memory care, and it involves teaching a “new†skillset to someone.  Just as children need to know how to dress themselves, go to the bathroom, and communicate their needs, so do those with dementia who eventually may completely forget these skills which you and I take for granted.  Using the Montessori Method you will find that it:

  • Respects a person’s dignity, personhood and lived experience;
  • Allows freedom within your provided structure (essentially allowing a senior to be an improvisational artists of sorts);
  • Changes the environment to suit the individual and not the other way around; and
  • Takes into account that an individual benefits by serving their community.

Source: HomeCare Magazine, 03/21 P.40

And when all else fails, don’t forget that the Alzheimer’s Association has a 24-hour hotline.  If you need some additional support you can reach them at 800-272-3900.

https://www.alzheimers.net/montessori-method-dementia

Carmel, CA Exercise Is Critical For Those With Early Onset Alzheimer’s

Three older women are holding pink dumbbells.


We have written repeatedly on our blog about the importance of proper nutrition, social interaction and exercise is to keeping the mind and body healthy for seniors.  A new study from Arizona State University Edison College of Nursing and Health Innovation had participants either ride a stationary bike or do stretching exercise for six months.  Those who took part in the regular exercise program had significantly less memory loss than those who don’t follow a particular exercise regimen.  The results were published in the Journal of Alzheimer’s disease. (AARP Bulletin May 21, P6).  Regular readers of my blog know that both my father and grandmother had this terrible disease when they passed away.  There are wonderful people at our local chapter of Alzheimer’s Association in Ryan’s Ranch.  They also have a 24-hour hotline if you need support at 800-272-3900.

Carmel, CA Zoom Calls Can Stave Off Alzheimer’s Disease And Dementia, New Study Finds

A nurse helping an elderly person walk with a walker.


A recent study by the University of West London’s Geller Institute of Ageing and Memory found that video conferencing services like Zoom has helped older people stave off the effects of Alzheimer’s disease and Dementia.  The study was massive, analyzing data from 11,418 men and women over the age of 50 who were asked how often they interacted with friends and family online, on the phone and in person.  They then completed memory tests which involved recalling keywords at various intervals.  Researchers found that regular communication helps seniors maintain long-term memory and those that use online tools have shown less decline in memory than those who don’t.  “This shows for the first time the impact of diverse, frequent and meaningful interaction on long-term memory, and specifically, how supplementing more traditional methods with online social activity may achieve that among older adults,†said Snorri Rafnsson, the study’s lead author.  Regular readers of my blog know that both my father and grandmother had this terrible disease when they passed away.  There are wonderful people at our local chapter of Alzheimer’s Association in Ryan’s Ranch.  They also have a 24-hour hotline if you need support at 800-272-3900.  They have also been doing more and more support groups online since the pandemic started, something I believe will continue into the future.

 

https://www.cnn.com/2021/05/15/health/elderly-zoom-dementia-pandemic-scli-scn-intl/index.html?utm_term=1621168651160e67555ee3ae3&utm_source=cnn_Five+Things+for+Sunday%2C+May+16%2C+2021&utm_medium=email&bt_ee=PyKeGR6jgg4O%2FIwFnTbgeQRv%2FPTqOwbLuOHcHkbLYEvioBrrxjpBWGqGzMGsjw9v&bt_ts=1621168651163

New Prescription Drugs Are Coming With A Hefty Price : By Derek Baine


More and more prescription drugs are coming to market with outrageous wholesale prices and many have wondered whether Medicare and private insurance companies will cover them.  They got their answer on Friday for the new Alzheimer’s drug from Biogen when The Department of Veterans Affairs said they won’t cover Aduhelm.  Medicare has yet to weigh in.  The VA cited the risks of causing series side effects and a lack of evidence that it improves cognitive function in denying coverage.  By law, the VA has greater leeway than other government health programs like Medicare and Medicaid to deny coverage of medicines it deems to be of poor value.  A group of VA doctors concluded last month that more than 150K veteran beneficiaries diagnosed with Alzheimer’s could receive the drug.  However, it would come at a cost of $4 billion annually.

Pacific Grove, CA Dementia, Alzheimer’s Disease The Greatest Risk For Your Portfolio In Your Golden Years

A purple background with the alzheimer 's association logo.


There was an interesting article in the Wall Street Journal that talked about prudently investing your retirement funds.  However, it noted that the greatest risk was not stock prices or interest rates.  Rather, it was a slow cognitive decline.  One big mistake or a series of smaller ones can wipe out your entire life savings.  To guard against this happening, investment firms like Charles Schwab, Fidelity Investments and Vanguard Group are strengthening the ways they detect possible signs of cognitive decline.  This includes making web sites more difficult to navigate for someone with an impaired memory, and monitoring for frequent password changes.  Some are notifying a designated family member when they see these signs.  Good for them!  Many people who start slipping into dementia or Alzheimer’s disease try to hide this from friends and family as they are embarrassed.  Regular readers of my blog know that both my father and grandmother had this terrible disease when they passed away.  There are wonderful people at our local chapter of Alzheimer’s Association in Ryan’s Ranch.  They also have a 24-hour hotline if you need support at 800-272-3900.

https://www.wsj.com/articles/baby-boomers-biggest-financial-risk-cognitive-decline-11622942343

Pebble Beach, CA Zoom Calls Can Stave Off Alzheimer’s Disease And Dementia, New Study Finds


A recent study by the University of West London’s Geller Institute of Ageing and Memory found that video conferencing services like Zoom has helped older people stave off the effects of Alzheimer’s disease and Dementia.  The study was massive, analyzing data from 11,418 men and women over the age of 50 who were asked how often they interacted with friends and family online, on the phone and in person.  They then completed memory tests which involved recalling keywords at various intervals.  Researchers found that regular communication helps seniors maintain long-term memory and those that use online tools have shown less decline in memory than those who don’t.  “This shows for the first time the impact of diverse, frequent and meaningful interaction on long-term memory, and specifically, how supplementing more traditional methods with online social activity may achieve that among older adults,†said Snorri Rafnsson, the study’s lead author.  Regular readers of my blog know that both my father and grandmother had this terrible disease when they passed away.  There are wonderful people at our local chapter of Alzheimer’s Association in Ryan’s Ranch.  They also have a 24-hour hotline if you need support at 800-272-3900.  They have also been doing more and more support groups online since the pandemic started, something I believe will continue into the future.

 https://www.cnn.com/2021/05/15/health/elderly-zoom-dementia-pandemic-scli-scn-intl/index.html?utm_term=1621168651160e67555ee3ae3&utm_source=cnn_Five+Things+for+Sunday%2C+May+16%2C+2021&utm_medium=email&bt_ee=PyKeGR6jgg4O%2FIwFnTbgeQRv%2FPTqOwbLuOHcHkbLYEvioBrrxjpBWGqGzMGsjw9v&bt_ts=1621168651163

Pebble Beach, CA Causes And Risk Factors For Alzheimer’s Disease

A woman and an older person smiling for the camera.


I volunteered for years for our local chapter of Alzheimer’s Association.  They are great people and they always have plenty of information and advice.  They recently published an article regarding Causes And Risk Factors For Alzheimer’s Disease which was eye opening.  Some risk factors like age, family history and genetics we just have to live with.  However, there are a number of lifestyle and wellness decisions that you make which can alter your risk for getting this disease.  Click on the link below to learn more.  Regular readers of my blog know that both my father and grandmother had this terrible disease when they passed away.  There are wonderful people at our local chapter of Alzheimer’s Association in Ryan’s Ranch.  They also have a 24-hour hotline if you need support at 800-272-3900.

https://www.alz.org/alzheimers-dementia/what-is-alzheimers/causes-and-risk-factors?WT.mc_id=enews2021_04_29&utm_source=enews-aff-20&utm_medium=email&utm_campaign=enews-2021-04-29&utm_content=homeoffice&utm_term=Story2