Price Slashed For New Alzheimer’s Drug

A doctor and patient looking at a book


Biogen Inc. made a dramatic price cut on its new Alzheimer’s disease treatment called Aduhelm after the product launch got off to a slow start.  It’s still expensive, even after the company cut the price of the drug almost in half, from a $56K annual cost to $28K.  Aduhelm is the first new treatment for Alzheimer’s disease in almost too decades.  “Too many patients are not being offered the choice of Aduhelm due to financial considerations and are thus progressing beyond the point of benefitting from the first treatment to address an underlying pathology of Alzheimer’s disease,†said Biogen CEO Michel Vounatsos.

Support Groups, Adult Day Care Critical For Alzheimer’s Patients

A nurse is smiling next to an older woman.


Becky Barney-Villano wrote a heart-wrenching story about the day in 2009 when she found out that her husband of 26 years had Alzheimer’s Disease, something she knew little about.  She had to train herself to be a caregiver, and learned the emotional toil this can take on both spouses.  She reached out for help, and found a support group for couples with a spouse who had been diagnosed with AD.  She found that the support group and getting help during the day such as using an Adult Day Care Center were critical to keeping her mental health sound.  Since the diagnosis, she has become a Senior Consultant, Fund Development, at the Alzheimer’s Family Center.  As regular readers of my blog know, both my father and my grandmother had Alzheimer’s Disease when they passed away. I found great comfort dealing with the folks at Alzheimer’s Association in Ryan Ranch.  They also have a 24-hour hotline which you can call whenever you need someone to talk to at 800-272-3900.

https://www.futureofpersonalhealth.com/fighting-alzheimers/how-caregivers-can-find-safety-nets-in-a-sea-of-change/

High Heart Rate May Signal High Risk Of Alzheimer’s Disease Or Dementia

A man in a wheelchair with a woman wearing gloves.


A new study out of Sweden found that checking a senior’s resting heart rate may help identify those who are more likely to experience a decline in mental function. On average, those with a resting heart rate of 80 beats or more per minute had an average 55% higher risk of dementia than those with a heart rate of 60 to 69 beats per minute. “We believe it would be valuable to explore if resting heart rate could identify patients with high dementia risk,†said Dr. Yume Imahori, lead author of the study from the Aging Research Center at the Karolinska Institute in Stockholm. He believes that early intervention may help delay the onset of dementia which can have a substantial impact on their quality of life.

https://consumer.healthday.com/b-12-6-high-heart-rate-linked-to-dementia-risk-2655910490.html?WT.mc_id=enews2021_12_08&utm_source=enews-aff-20&utm_medium=email&utm_campaign=enews-2021-12-08&utm_content=homeoffice&utm_term=Story2

 

Early Onset Alzheimer’s Disease Can Devastate The Whole Family

A doctor and patient looking at a book


The Alzheimer’s Association has been running a number of interesting stories in recognition of National Family Caregivers Month.  A recent story featured a 56-year-old woman named Ricci Sanchez who was chief operating office of a large hospital when she realized she was coming down with younger-onset Alzheimer’s disease. She was relying on sticky notes just to get through the day.  She was referred to the Nantz National Alzheimer’s Center where she enrolled in the Longitudinal Early-Onset Alzheimer’s Disease (LEADS) study.  Her husband of 36 years, Andy, is now his caregiver—he previously was a caregiver for both of his parents.  His father, who passed away in 2017, had dementia, while his mother, who passed away in 2020, had Parkinson’s disease. What a sad way to end what are supposed to be your golden years.

 

https://www.alz.org/blog/alz/november-2021-(2)/my-care-partner-my-life-partner-navigating-alzheim?WT.mc_id=enews2021_12_08&utm_source=enews-aff-20&utm_medium=email&utm_campaign=enews-2021-12-08&utm_content=homeoffice&utm_term=Story1

Patient Death In New Alzheimer’s Drug Aduhelm

A doctor and patient looking at a book


There was much excitement when the FDA approved a new drug called Aduhelm to treat patients with Alzheimer’s disease.  Although there was some debate over its efficacy, the fact that there have been no new drugs brought to market to treat this horrible disease in decades had some filled with hope.  However, Biogen Inc., the pharmaceutical company who makes the drug, admitted this week that there was one death linked to Aduhelm.  The company announced that a 75-year old who took the drug was hospitalized and diagnosed with swelling in the brain before dying.  It’s unclear that the brain swelling was linked to the drug, however, there is sure to be an investigation due to the fact that brain swelling, also known as ARIA-E, was cited as one of the most common side effects during testing of the drug.

 

https://www.wsj.com/articles/biogen-investigates-death-of-aduhelm-patient-11636479862

Salinas, CA Can Driving Habits And Credit Scores Predict Future Alzheimer’s Or Dementia Diagnosis?

An older woman with a gray hair sitting in front of trees.


There has been such slow progress on the search for a cure for Alzheimer’s disease, I was pleased to see that some researchers are focusing on finding early clues as to who may be vulnerable to getting Alzheimer’s disease or some other type of dementia.  A recent article in The New York Times said that some scientists believe that pathologies underlying brain decline may begin many years before symptoms emerge.  A spate of experiments is underway to see if little things like overlooking a couple of credit card payments or habitually braking while driving could be a sign that dementia is in your future.  “Early detection is key for intervention, at the stage when that would be most effective,†said Saye Bayat, the lead author of a driving study funded by the National Institutes of Health and performed at Washington University.  The study took 64 older adults with preclinical Alzheimer’s disease as determined by spinal taps and 75 who were deemed cognitively normal (results were not shared with the study participants).  For a year, researchers measured both groups’ driving performance.  The study found that driving behavior and age could predict preclinical Alzheimer’s 88% of the time.  Those findings could spur recruitment for clinical trials and allow for interventions—like an alert when a car drifts—to help keep drivers safely on the road.  Dr. Jason Karlawish, a geriatrician and co-director of the Penn Memory Center, called the study “provocative†and well designed.  “The results suggest that monitoring a real-world, cognitively intense behavior can detect the earliest, subtle signs of emerging cognitive impairment,†he said.  Another study analyzed medical records and consumer credit reports for more than 80,000 Medicare beneficiaries and found that those who eventually received a diagnosis of Alzheimer’s disease were significantly more likely to have delinquent credit card payments (and sub-prime credit scores) than those with similar demographics who never received an Alzheimer’s diagnosis.  I hope these studies bear fruit.  Regular readers of my blog know that both my father and grandmother had this terrible disease when they passed away.  There are wonderful people at our local chapter of Alzheimer’s Association in Ryan’s Ranch.  It is always a struggle figuring out how to deal with a loved one, as the symptoms can seem to change from day to day.  Drop by or give them a call if you need help.  And when all else fails, don’t forget that the Alzheimer’s Association has a 24-hour hotline.  If you need some additional support you can reach them at 800-272-3900.

 

https://www.nytimes.com/2021/08/23/health/dementia-behavior-alzheimers.html

Carmel, CA Dealing With A Loved One With Alzheimer’s Disease Is Always A Struggle : Try The Montessori Method

A doctor and patient looking at a book


Regular readers of my blog know that both my father and grandmother had this terrible disease when they passed away.  There are wonderful people at our local chapter of Alzheimer’s Association in Ryan’s Ranch.  It is always a struggle figuring out how to deal with a loved one, as the symptoms can seem to change from day to day.  And unlike most other chronic diseases, there is little that can be done in the way of treatment.  One relatively new method has been used for more than a century on special needs children and is being tried out on those with dementia.  It’s called the Montessori method for memory care, and it involves teaching a “new†skillset to someone.  Just as children need to know how to dress themselves, go to the bathroom, and communicate their needs, so do those with dementia who eventually may completely forget these skills which you and I take for granted.  Using the Montessori Method you will find that it:

  • Respects a person’s dignity, personhood and lived experience;
  • Allows freedom within your provided structure (essentially allowing a senior to be an improvisational artists of sorts);
  • Changes the environment to suit the individual and not the other way around; and
  • Takes into account that an individual benefits by serving their community.

Source: HomeCare Magazine, 03/21 P.40

 

And when all else fails, don’t forget that the Alzheimer’s Association has a 24-hour hotline.  If you need some additional support you can reach them at 800-272-3900.

 

https://www.alzheimers.net/montessori-method-dementia

Salinas, CA Family Caregivers Face Heartbreaking Journey With Alzheimer’s Disease, Often Ending Up In Hospice

A woman looking out of the window at her home.


There was a heart breaking article in the Wall Street Journal recently.  It featured Nick Clement, age 78, who has cared for his wife Lucy for the past decade.  Lucy has Lewy body dementia as well as Alzheimer’s disease.  Nick wanted to take care of his wife, however, he quickly found out how difficult it is taking care of someone who is slipping rapidly into dementia.  As her disease progressed, she was unable to brush her teeth or comb her hair, so Nick did that too.  He said that some friends stopped calling, which can be heartbreaking.  Eventually, after Lucy had dropped from https://www.homecaremag.com/june-2021/buzz-vibration-therapy125 pounds down to 90, it took its toll on Nick who was gaunt and depressed.  He had to call in hospice which took over Lucy’s care.  Hospice asked Nick if he had told Lucy it was OK for her to go.  He had not, but went to her room and looked into her eyes and told her he would be alright, it was OK to go.  Sadly, she died the next morning.  Unfortunately, most of us will have to go through this with a family member.  If you need help, CHOMP has a service called Hospice of the Central Coast, as does the Visiting Nurses Association (see links below).  Please reach out for help if you need it, they both have compassionated caregivers.

https://www.montagehealth.org/care-treatment/hospice/

https://ccvna.com/

https://www.wsj.com/articles/one-familys-lessons-learned-from-a-decade-of-caregiving-11623691961

Carmel Highlands, CA Home Care Aide (HCA) Senior Alzheimer’s & Dementia Caregiver Jobs Available : Set Your Own Hours

A nurse is smiling next to an older woman.


Carmel Highlands, CA Home Care Aide (HCA) Senior Alzheimer’s & Dementia Caregiver Jobs Available (Also Aromas, Big Sur, Carmel, Carmel-by-the-sea, Carmel Valley, Castroville, Corral-de-Tierra, Del Rey Oaks, Gonzalez, Greenfield, King City, Marina, Monterey, Pebble Beach, Prunedale, Salinas, Seaside, Soledad & Watsonville

We have developed a reputation for having the best caregivers (Home Care Aides or Senior Companions) in Monterey County over the past decade and have recently expanded into Santa Cruz County.   We are currently looking for qualified caregivers.

Family inHome Caregiving of Monterey is seeking compassionate, mature and dependable caregivers who want to improve the lives of our elderly Clients by providing in-home, non-medical care.  Our services include:

Caring companionship

Meal preparation

Incidental transportation

Running errands

Light housekeeping

Medication reminders

Monitoring of safety while bathing

Information and referral services

Other services that improve the safety, security and quality of life of seniors.

If you believe you would make an exceptional Home Care Aide, we would love to hear from you!  We prefer those with experience helping the elderly, disabled and others with mobility problems.  Having cared for those with dementia and/or Alzheimer’s is a plus.  To work for us, you must have excellent references, a clear criminal record, a good driving record, and an insured reliable vehicle.  To apply, please visit our website www.fhcofm.com, click on home care aides, then careers where you can fill out an application online.  We have immediate openings all over Monterey County.

Salinas, CA Dealing With A Loved One With Alzheimer’s Disease Is Always A Struggle : Try The Montessori Method


Regular readers of my blog know that both my father and grandmother had this terrible disease when they passed away.  There are wonderful people at our local chapter of Alzheimer’s Association in Ryan’s Ranch.  It is always a struggle figuring out how to deal with a loved one, as the symptoms can seem to change from day to day.  And unlike most other chronic diseases, there is little that can be done in the way of treatment.  One relatively new method has been used for more than a century on special needs children and is being tried out on those with dementia.  It’s called the Montessori method for memory care, and it involves teaching a “new†skillset to someone.  Just as children need to know how to dress themselves, go to the bathroom, and communicate their needs, so do those with dementia who eventually may completely forget these skills which you and I take for granted.  Using the Montessori Method you will find that it:

  • Respects a person’s dignity, personhood and lived experience;
  • Allows freedom within your provided structure (essentially allowing a senior to be an improvisational artists of sorts);
  • Changes the environment to suit the individual and not the other way around; and
  • Takes into account that an individual benefits by serving their community.

Source: HomeCare Magazine, 03/21 P.40

 

And when all else fails, don’t forget that the Alzheimer’s Association has a 24-hour hotline.  If you need some additional support you can reach them at 800-272-3900.

 

https://www.alzheimers.net/montessori-method-dementia