Pebble Beach, CA Hope For Those With ALS, AKA Lou Gehrig’s Disease

A doctor and patient looking at a book


Lou Gehrig’s disease, or ALS, seems similar to Alzheimer’s disease but attacking the body rather than the brain.  There is no cure for either disease, and the ailment just continues to progress and leave you more and more debilitated.  However, USA Today recently ran an article about three promising themes:

  1. A new drug—developed in part with money from the 2014 Ice Bucket Challenge—increased the average survival of patients in clinical trials by 7.5 months.
  2. A first-ever clinical trial is testing multiple ALS treatments at once; and
  3. Record levels of federal research funding are planned for this year.

Many are hopeful that Amylyx’s AMX0035 which got a $2.2 million grant from the $111 million Ice Bucket Challenge, will be approved by the FDA.  Findings for AMX0035’s Phase 2 trial were so promising that the ALS community is pushing the FDA to fast track approval.  They have gone so far as to ask the FDA to skip a Phase 3 trial, the only time in history that the ALS Association has asked the FDA to do so.  However, it’s a long-shot.  If you or a loved one are struggling with ALS, contact the Monterey Chapter of ALS here:

http://web.alsa.org/site/TR?pg=entry&fr_id=14647&NONCE_TOKEN=D30086CF168CADF46857EB53C986C9EA

Carmel, CA Hope For Those With ALS, AKA Lou Gehrig’s Disease

A doctor and patient looking at a book


Lou Gehrig’s disease, or ALS, seems similar to Alzheimer’s disease but attacking the body rather the brain.  There is no cure for either disease, and the ailment just continues to progress and leave you more and more debilitated.  However, USA Today recently ran an article about three promising themes:

  1. A new drug—developed in part with money from the 2014 Ice Bucket Challenge—increased the average survival of patients in clinical trials by 7.5 months.
  2. A first-ever clinical trial is testing multiple ALS treatments at once; and
  3. Record levels of federal research funding are planned for this year.

Many are hopeful that Amylyx’s AMX0035 which got a $2.2 million grant from the $111 million Ice Bucket Challenge, will be approved by the FDA.  Findings for AMX0035’s Phase 2 trial were so promising that the ALS community is pushing the FDA to fast track approval.  They have gone so far as to ask the FDA to skip a Phase 3 trial, the only time in history that the ALS Association has asked the FDA to do so.  However, it’s a long-shot.  If you or a loved one are struggling with ALS, contact the Monterey Chapter of ALS here:

http://web.alsa.org/site/TR?pg=entry&fr_id=14647&NONCE_TOKEN=D30086CF168CADF46857EB53C986C9EA

Monterey, CA Hope For Those With ALS, AKA Lou Gehrig’s Disease

A doctor and patient looking at a book


Lou Gehrig’s disease, or ALS, seems similar to Alzheimer’s disease but attacking the body rather the brain.  There is no cure for either disease, and the ailment just continues to progress and leave you more and more debilitated.  However, USA Today recently ran an article about three promising themes:

  1. A new drug—developed in part with money from the 2014 Ice Bucket Challenge—increased the average survival of patients in clinical trials by 7.5 months.
  2. A first-ever clinical trial is testing multiple ALS treatments at once; and
  3. Record levels of federal research funding are planned for this year.

Many are hopeful that Amylyx’s AMX0035 which got a $2.2 million grant from the $111 million Ice Bucket Challenge, will be approved by the FDA.  Findings for AMX0035’s Phase 2 trial were so promising that the ALS community is pushing the FDA to fast track approval.  They have gone so far as to ask the FDA to skip a Phase 3 trial, the only time in history that the ALS Association has asked the FDA to do so.  However, it’s a long-shot.  If you or a loved one are struggling with ALS, contact the Monterey Chapter of ALS here:

http://web.alsa.org/site/TR?pg=entry&fr_id=14647&NONCE_TOKEN=D30086CF168CADF46857EB53C986C9EA

Monterey, CA Hope For Those With ALS, AKA Lou Gehrig’s Disease

A woman helping an older person with papers


Lou Gehrig’s disease, or ALS, seems similar to Alzheimer’s disease but attacking the body rather the brain.  There is no cure for either disease, and the ailment just continues to progress and leave you more and more debilitated.  However, USA Today recently ran an article about three promising themes:

  1. A new drug—developed in part with money from the 2014 Ice Bucket Challenge—increased the average survival of patients in clinical trials by 7.5 months.
  2. A first-ever clinical trial is testing multiple ALS treatments at once; and
  3. Record levels of federal research funding are planned for this year.

Many are hopeful that Amylyx’s AMX0035 which got a $2.2 million grant from the $111 million Ice Bucket Challenge, will be approved by the FDA.  Findings for AMX0035’s Phase 2 trial were so promising that the ALS community is pushing the FDA to fast track approval.  They have gone so far as to ask the FDA to skip a Phase 3 trial, the only time in history that the ALS Association has asked the FDA to do so.  However, it’s a long-shot.  If you or a loved one are struggling with ALS, contact the Monterey Chapter of ALS here:

http://web.alsa.org/site/TR?pg=entry&fr_id=14647&NONCE_TOKEN=D30086CF168CADF46857EB53C986C9EA

Brain Implants Could Help Paralysis And ALS Victims


Researchers have had success doing brain implants on those who are paralyzed.  Brain activity is collected by sensors in the brain allowing a computer to convert the brain activity into a mouse click or zoom in on something on the computer screen.  There are an estimated 500K people suffering from spinal-cord injuries or who have partial mobility due to suffering a stroke.  And with COVID-19 causing some serious side effects even after an apparent recovery, new uses may be found for this type of surgery.